Patient Advocacy Lead

Principal Responsibilities

The Patient Advocacy Lead will work as part of the Global Patient Experience function with the aim to contribute to the development and implementation of the Patient Advocacy Strategy across various therapeutic areas of interest to Alexion.

Role specific tasks

 Lead and execute the development and implementation of the Patient Advocacy plan across the therapeutic areas of interest to Alexion Türkiye as well as ensuring execution of identified & prioritised activities

 Identify, build, and maintain strategic and sustainable relationships with new patient

communities and associations in pipeline therapeutic areas

 Build, maintain and enhance strategic and sustainable relationships and partnerships with patient and patient caregivers

advocacy organizations (PAGs) in the areas of interest to Alexion

 Contribute to the Patient Advocacy function of Alexion Türkiye by providing dedicated support to local launch and brand teams as well as other key local workstreams by identifying critical areas for patient engagement / patient input; keep track of and communicate key deliverables, milestones and timelines / coordinate & implement related activities

 Contribute to the Patient Advocacy function in Türkiye by showcasing the value of Patient Advocacy and by designing patient-centric processes and delivering best-in-class patient engagement across the therapeutic lifecycle

 Contribute the Alexion Türkiye perspective within the Global advocacy team, and contribute to global/international work streams where the local perspective is required

 Support the coordination and implementation of the engagement of PAGs in clinical development programs running and/or planned in Alexion Türkiye

 Support the coordination and implementation of the engagement of PAGs in launch planning and data generation initiatives (HEOR/ MR) as well as in relation to local HTA processes or other post-marketing initiatives, in close partnership with Medical Affairs and Market Access teams and

 Based on local needs assessment, carry out strategic Patient Advocacy programs and partnerships related to disease awareness and education, diagnosis, access to appropriate care, , in close collaboration with the

the cross-functional team and especially with relevant medical colleagues

 Contribute to educating internal stakeholders on the role of PAGs and our standards of working with PAGs; champion the patient voice and experience at the local level and ensure that patient perspectives are reflected in our thinking and approaches

 Manage and track PAG sponsorships & other key processes in Alexion Türkiye; coordinate annual disclosure of PAG funding in Alexion Türkiye as appropriate

 Represent Alexion at local PAG events, seminars and conferences

 Contribute to the company’s evolving philosophy and long-term vision for patient engagement as well as enhancing the patient-centric culture within the company

 Identify and create opportunities for other internal functions to engage with and listen to patients and caregivers to learn about their journey and needs

 Establish close cross-functional collaboration with all key internal business functions

 Ensure ethical interaction and compliant collaboration/partnership with PAGs in Türkiye

 Manage and execute multiple projects while maintaining an understanding of local and global Priorities as well as attention to detail and excellent quality and execution skills

 Show excellent project management skills by ensuring excellent coordination and execution of all activities, keeping orderly record, project tracking, internal reporting, minutes taking and presentations drafting

 Demonstrate ability to take initiative and consistently deliver high-quality work

Work as active member of patient task force working groups under AIFD Türkiye organization.

Qualifications*

 Minimum of 3 years of related experience in Public Health & Pharmaceutical Policy,

Healthcare, Communications or Patient Advocacy

 Knowledge of the rare disease Patient Advocacy community in Türkiye along with proven track record of successful interactions with patient advocates and patient

 Specific knowledge in the area of neurology, hematology and metabolic therapy areas is desirable

 Solid knowledge of the medicine’s R&D process and opportunities for patients and

Patient Advocacy groups to contribute to such processes

 Knowledge of the legal and regulatory compliance environment impacting the

pharma/bio industry and interaction with Patient Advocacy groups

 Understanding of key trends affecting patient engagement and new forms of patient interactions

 Intuitive, socially intelligent, flexibility and creativity to excel in a rapidly changing

environment

 Proven planning and organizational skills with experience managing multiple

priorities; ability to prioritize in a shifting environment with a sense of urgency

 Strong track record in working cross-functionally

 Excellent communication skills both vertically and horizontally

 Exceptional sense of ethics

 Willingness to travel (10-15%) within the Türkiye and international, as required

 Most importantly, a passion for patients and research

Education

 University degree required

 Fluent in English, written and spoken. Other additional languages an advantage

 Advanced user skills in standard office software applications

Date Posted

19-Feb.-2024

Closing Date

30-Apr.-2024

Alexion is proud to be an Equal Employment Opportunity and Affirmative Action employer. We are committed to fostering a culture of belonging where every single person can belong because of their uniqueness. The Company will not make decisions about employment, training, compensation, promotion, and other terms and conditions of employment based on race, color, religion, creed or lack thereof, sex, sexual orientation, age, ancestry, national origin, ethnicity, citizenship status, marital status, pregnancy, (including childbirth, breastfeeding, or related medical conditions), parental status (including adoption or surrogacy), military status, protected veteran status, disability, medical condition, gender identity or expression, genetic information, mental illness or other characteristics protected by law. Alexion provides reasonable accommodations to meet the needs of candidates and employees. To begin an interactive dialogue with Alexion regarding an accommodation, please contact [email protected] . Alexion participates in E-Verify.